Tuesday, June 2, 2015

​Old Before My Time: Hayley Okines' Life with Progeria

by Hayley and Kerry Okines

The extraordinary life of Britain's oldest teenager Hayley Okines is like no other 13-year-old girl. Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet, she faces her condition with immense courage and a refreshing lack of self-pity. Here, Hayley and her mum Kerry reflect on her unusual life. Share in Hayley's excitement as she travels the world meeting her pop heroes and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 - the average life expectancy for a child with progeria - Hayley talks frankly about her hopes for the future and her pioneering drug trials in America.

~ Crystal

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